Hoback River, Gros Ventre Mtns. This was the first chemotherapy treatment and its been a long day. It all went very well. This is going to be too long for most people (you guys just skim), but several want all the details and I also use the journaling for my poor memory.
Up and getting ready by 6:30 a.m., but was ready too early. Had toast and tea for breakfast. Already I knew I hadn't been drinking enough water, but spaced it out anyway. By 7:45 I told Joe I should be going and he got the car out for me and opened the gate. The back of my car is full of stuff to go to the second hand store in Jackson and Judi knows where that is. Left mail in the box to go today. Met 6 gravel trucks on the dirt road, and it's so narrow I just get over as far as possible and stop until they pass. The road is snow packed this morning, so don't want to get off into the b'ar pit. After I got onto the pavement the trucks had soon turned and go a different direction, so the rest of the drive into town was uneventful and enjoyable. The road to Boulder was icy and slick and then into Pinedale mainly dry. I met Judi about 8:45 at Rendezvous Pointe. This was the first time for me to drive since my surgery, just because I had no where to go. I felt just fine with driving and drove us on to Jackson. I expected much worse conditions because had heard Bondurant and the Hoback had 6 to 8 inches of snow but they didn't have any more than we did, then down into Jackson wet road and almost no snow there.
We stopped at KMart to return a pair of pants I had bought in August that were too big. They told me the time for returning had expired in October. I just threw my hands in the air and left them there. If they do the right thing, they will credit my account, but I don't really expect that will happen.
Next the back way on to the hospital. We were in to Oncology by 10:45, 15 min. early and sat in the waiting room just a few moments. The chemo room has six kind of lounge chairs and all of them were full all the time we were there. They told me some of the people come in at 9 and aren't finished until 6 p.m. Soon one was empty and they sat me in that place. All the nurses came and introduced themselves and they certainly seemed very nice, which I had heard for some time, even years ago had heard their names from people who go for chemo. Lots of Pinedale people go there and I bet we saw half a dozen at least while we were there. Judi knew most of them but I got acquainted. Its just mind boggling how many people are having cancer lately.
Today they are giving me Gemcitabine. I will have it for 3 weeks, probably on Mondays, and 1 week off, FROM NOW ON. (For December this is working perfectly as Beverly and her family will be here for Christmas. On the 31st New Years Eve I have an appointment to see Dr. Buys - She comes up from the Huntsman Cancer Clinic.) They assured me at Huntsman that this is a rather mild chemo without many bad side effects. It is given in an IV. I have learning articles about this and other chemo drugs they may go to later. This will be the longest day as they get started with plenty of paperwork and getting everything set up - each thing took about 30 to 45 minutes. I asked if I could see Dr. Menolascino while I was there and they said yes. He has been Joe's wonderful doctor up there since his stroke and through much of his heart trouble.
First they needed to get the IV saline solution started, and it took five tries to find a vein that would work - and I knew right away I should have been drinking more water to be hydrated. "Lynn's veins are challenging." So they suggest I have either a picline or port inserted in my chest for easy access and drawing blood. Maybe will do that next time, the picline is done by the nurses (It has to be flushed with saline solution every day - by me - sounds scary), and the port is placed under the skin on your chest as outpatient surgery by Dr. Poore. I would have it done in the morning and then get the chemo the same day. I don't like the sound of them because the line goes nearly to the heart, but they say its a good thing to do and are very safe. Also next time must wear a short sleeved top.
When the IV got going they took blood to check the blood counts and bone marrow depression. My white count was a little high at 11.1 but Dr. Buys said o.k. to go ahead with the Gem stuff. If the blood count is ever not good, I won't get chemo that day and just go home until next time. The lab work took about 30 minutes and then the pharmacy mixed up my chemo prescription.
My nurses were Lisa and Carol and I met Judy Bayse, the nurse in charge of Oncology. Judi always draws little caricatures of each person next to their names in all the notes she has taken for me. Carol asked a lot of my medical history - at least I didn't have to fill out the paperwork - she just did it on the computer.
They gave me symptoms I should watch for (pale, tired, short of breath, sore throat or fever, must take my temp if I feel hot or cold so have to buy a digital thermometer.) She gave me more tips, like I might have hair thinning and they have complimentary wigs if I would want one - I said no I'll just cut it off. I'm ready for a hair cut and think I'll get a pixie type cut. also if weather is bad or I don't feel like coming on a regular day, I can always reschedule for another day.
They adjusted the meds I've been taking a little , and there are a few changes, mainly to take the heavier pain med more often, more senna if needed not to get constipated, and change from zantac to prilosec for the indigestion feelings. They can call in sleeping med if I want it. What can it hurt at this point, and not sleeping has always been a problem with me. I might get through this all better if I was well rested. Only thing I know I am groggy the next day and accomplish very little - such as I would like to be painting and doing other things with a clear mind.
By 1:30 the chemo was dripping and Judi went to take the things to the second hand store. It was snowing and blowing heavily when she went and she said it was just awful to drive in, so eventually we asked about making a room reservation which they did for us, instead of driving home in a storm. The rate was very reasonable, down at the Hitching Post Motel Cabins. I ordered a turkey sandwich on grilled sourdough and salad which tasted pretty good, and when Judi came back she got the same thing. Just sat there with a roll up table and ate in the chair.
At 2 p.m. Dr. Meno came in and probably spent 30 minutes getting my history and making suggestions. Judi took more notes. He also looked at a small lump above my ankle and said we would watch that. It's not likely a clot, could be an odd bruise or a tumor from the main cancer. If it spreads they will do an ultrasound there. He said I am at risk for blood clots and gave me the symptoms to watch for that. He also agreed with med changes. I love Dr. Meno and am glad he has agreed to be my Dr. there for this.
At 2:30 the Chemo was finished, and when that came out they drew more blood to check the tumor marker level- can't remember what its called without looking it up.They said that tonight I should take oxycodone mostly to help sleep and the stronger anti nausea drug I have from SLC and haven't used yet, so I don't get nauseous from the treatment and I did take those at bedtime.
Since it had stopped snowing and didn't amount to much we cancelled the room reservation and decided to drive on home. Carol said I shouldn't drive, so Judi drove to Pinedale. It was another beautiful drive, stormy skies and the river and scenery were outstanding. We went slow as long as it was icy/slushy, followed a snowplow for a while and took advantage of the fresh sand he was spreading. Gradually the road got better and over the rim was dry. Back to Pinedale and let Judi off at her car about 4:30. Had brought my grocery list and should have shopped for groceries, but decided not to be another hour later getting home (Joe below). I could go back to town another day to shop - however now the weather isn't looking good all week. I got gas and got home at 5:30. Had such an enjoyable and relaxing drive home with Judi and on home through the country side - getting dark -more gravel trucks to get past. Stopped and got the mail. I have to tell you about Joe's greeting when I came in. I will never understand him, except just to say its the only way he know how to show he's concerned. I came in knowing he's always expecting me to be here hours before its even possible. No how are you? "He said where have you been!" I said "What do you think, that we've been out partying? Judi and I having beers at the Cowboy Bar flirting with all the guys?" And he said "YES!!" Aargg. there went my serenity. I explained that we had driven 6 1/2 hours and were in the hospital for over three hours. He thought when I said the chemo would take 20 minutes or so to drip in that I'd be back before noon.
He was making bacon and eggs for his dinner. I had some chicken noodle soup, some tuna, and 1/2 a pear and that seemed to settle o.k. Later had some shredded wheat too. I felt hungry. A headache started about 8 p.m. and lasted all night, the oxycodone didn't take it away. I used my beanbag heating pillow. Did sleep very well.
HERE ARE JUDI'S NOTES:
I went to Jackson with Lynn today for her first chemo today. she drove. I felt blessed to be able to go with her. The Hoback River was enchanting. The colors of the ice, the water bubbling or surging around it and the greens and blues of the water. WOW. The "chemo" room is like 6 dentist chairs all lined up. I felt like I was in a beauty parlor. Everyone talking to each other, laughter, caring, attentive nurses. Any food any time for you! Just order it.
With the paperwork, lab tests, questions and consultations it took longer than "normal". We were there from 10:45 to 2:30. Lynn is such a peaceful person to be around. when the doctor asked her what emotions she was going through (anger, sadness, blah blah blah) she answered, "I'm fine". and she was!
Here is the procedure. The nurse pokes you to get an IV started (4 failures before they got it in today!), then does a blood draw. You wait about 30 minutes for those results and they determine the Chemo you will receive. The lab stirs up your personal Chemo solution (another 30 minutes waiting for that) and then about 30 minutes for it all to drip into your arm.
Lynn looked and felt fine, but just to be safe, I drove home. We'd had a snow storm while we were in the hospital. the roads were snowy/icy, so I drove quite slow. We got back to Pinedale at 4:30 and she was fine to drive home. I knew you'd all want to know! Lynn is ready for quiet time at home. She wants to paint!
Love, JUDI