We're having lightning, and looks like it might storm, so I'll turn off the computer and write later. Feeling better this evening....
Don't think I've every had such a discombobulated attempts at trying to write. No sooner got started for about the fourth time, and the power went off. We've had storminess all afternoon, but no rain, just a lot of wind, thunder and lightning. It's back on now and maybe I can get this written up. Skim if you think this is wordy, but some people want the details.
Up early yesterday morning, and there was a beautiful full moonset going on. Left at home at 6:30. Judi and I met at Rendezvous Pointe at 7:30. She had offered to take her car, as I was trying to arrange to get the inside of mine cleaned while we were gone, but never could get ahold of the guy that does the work. So drove mine. It was a gorgeous morning, and heading north the scenery was beautiful. I should have stopped a few times for photos but didn't. The whole countryside has turned green in just a week or so, and even the leaves have popped out as you drop down into Jackson. Whole hillsides of the aspen trees are leafing out now. For the first time all winter we saw the Tetons as we drove in to town. I took some pictures out the window on the way home, but hardly any turned out. We saw wildlife, but not as much, so the migrations must be about over.
We got to Oncology just about on time, 9:30, and got into the chair. Barb and Dave from Pinedale were there too and we visited with them. Judi brought her laptop and shared it with me. I checked email and played a little free cell. I was going to bring mine and write on the book, but decided not to.
They took blood tests this time. The liver function tests are close to normal now which is good news. The pain in that area is still gradually getting better and I'm about not to need pain med in the day, have been decreasing that for some time. I like to take it at night though and be more comfortable sleeping. I saw Dr. Meno this time and got enough prescriptions to last for a while since I'll be going to Vegas.
Dr. Meno thinks the abdominal pain has been tumors blocking some of the liver ducts (not the bile duct which Dr. Mulvihill repaired when he removed the gall bladder and said I would have no more trouble with that). That seems to make perfect sense and the best answer about that I've had for the source of that pain. And - if that is the case - it means those tumors are shrinking.
For some time now I've been going through all the possibilities of how I would get to Vegas for Tayler's graduation and the other family things that are going on then - Birthday party for grandsons Shane and Clayton, and Beverly's surgery. So many options they were just whirling around in my mind trying to make a decision of what to do. And how to fit it all in between the treatments. I refused to dwell on all the thoughts and just knew that when the time came, the right decision would present itself. Had checked into flying - same old story about getting to an airport and all the airport rigmarole. Whether to pay almost triple to fly from Rock Springs or Jackson and still have to drive 2 or 3 hours to get there - as opposed to driving 6 hours to SLC and getting on the plane there. I had about decided to take the shuttle that runs from Pinedale to Salt LakeAirport and get on the plane, arrange for wheel chairs or a cart ride in the airports, on and on. Then I found out the shuttle isn't going to run at all this summer.
So I knew that when I went to my appointment and talked to them there what they had to tell me would be the key. I asked Dr. Meno about driving and taking my next treatment in Vegas, maybe even two treatments. He thought it would be just fine. I told him I was concerned about this sleepiness I have during the day might not be safe to try to drive on a long trip. He prescribed a few "wake up" pills ($11 each) to take to keep me alert and said they would work fine - just to take them early in the morning, then they shouldn't affect sleep at night. He told me to stay on track with the treatments, to take this two week break and take the next treatment in Vegas. There would be no problems getting the treatment(s) there.
We stopped by KMart and picked up the prescriptions and shopped for things that were on my list. Judi drove us home. She is so patient waiting so long, and being helpful. She took the prescriptions over to KMart early so we could just pick them up without waiting. I shopped for groceries in Pinedale and got gas. Didn't get home until about 8 p.m.
So here is the schedule for traveling:
Monday May 26 - Pinedale Cemetary
Tuesday May 27 Meetings: Mixed Media, with information discussion for the Pinedale Community Fine Arts Center and then SCAG business meeting, will be all day in Pinedale.
Wednesday, 9:45 May 28 am scheduled for another CT scan in Jackson. Guess they want to see if this new chemo treatment is working. Although I hadn't been scheduled for the next scan until after this two months of Full Fury, they are going to do one half way through. I'd rather stick to the original plan Dr. Ward had, but will go get it.
Friday May 30th + or - a day I'll drive to Vegas and see how I do - whether to drive all the way to Betty's that day, or if I get tired I'll go as far as feels alright and get a motel and go on to Betty's in Mesquite on Saturday.
Monday morning June 2 Debbie will come and get me and take me to Vegas since I'm not sure I want to drive down there in the traffic right now. I'll leave my car at Bettys. That is the day of Shane and Clay's birthday dinner with all the family.
June 3 Debbie will take me for the next chemo treatment at the Las Vegas Cancer Institute. She says its about 20 minutes from their house.
June 5 Probably get the pump off
June 6 Tayler's graduation.
June 7 A graduation party for Tayler.
June 11 Beverly's surgery.
June 17 will be the date for the next treatment, and think I'll see how it goes to know whether to come home for it, or have it in Vegas and then start home about the 19th. All I have to do is call Head of Oncology Judy,at Jackson, and she will arrange it. This is a long time to be gone - about 3 weeks - and a long time for Joe to be here alone.
Sometime while I'm down there I hope to see a few of my high school girlfriends - maybe have lunch at Overton or Mesquite so need to set that up.
Last night I sat up most of last night getting just a couple hours of sleep, not especially sick, but very uncomfortable with various miseries. My eyes are really giving me trouble, not a new thing, but a little worse this time. It's kept me from doing almost anything last night and all day today. The various symptoms start while I'm still sitting in the chair, gas, runny nose, the eyes started burning and they get blazing red. After I got home there was a little nausea, shoulder and neck pain, and headachy. None of it is terribly awful, but sure don't feel like doing much of anything. Enough of that, but some people have asked what I'm going through. It will slowly get better, By tonight the symptoms I've had have gradually gotten better, the eyes are doing better but will bother me for some days. I took a nap for most of the afternoon, and went back to bed after dinner. Back up now and able to write.
Today the Richies took one bunch of their cattle out. The cowboys were riding at the crack of dawn and gathering the cows and calves out of the field with a pretty pink sunrise as a backdrop. They go out past the river with the herd, and drop them near a water hole. Then will go out and push them further out on the desert. The the second bunch will go out behind them probably the next day.
Tomorrow is another long day but should be home earlier. I've set the alarm for 6 a.m.