
Continued:
So After seeing the elk herd, Gina and I went on down the road to Jackson. And after I took several wrong turns, stopped at the post office where I mailed an envelope of black footed ferrets to Judy in CO. I don't know where my mind was that morning but I really was spacing a lot of stuff out, probably because of the appointment. We went on to the hospital and found it was head of the Oncology department Judy's birthday. There was even chocolate birthday cake. Judy got my "vitals" and then I had an hour visit with Dr. Ward. He was so sharing, and answered everything so clearly. I took along four pages of questions, but he answered every one of them in his discussion and I never even needed the list.
Basically there's not a lot of new information. I'll just tell you the important and interesting stuff. Gina went in with me and we both took notes. You can ask more questions if you want.
My tumor marker test reading is way down; 137 is normal and mine is now 23 (started at 330+ before surgery). Dr. Ward doesn't know why the tumor marker reading is so good. Because.... although the CT scans are not detecting the tumor on the head of the pancreas, it is showing the size and number of 'spots" on and throughout the liver have increased quite markedly. Despite that the liver function is quite good now. Swelling in the feet/legs/ankles that I've had off and on for some time is related to liver function.
Pancreatic cancer is very hard to detect and that is why it was so advanced before they found mine and it is considered incurable. We asked if we could see the pictures of the spots on the liver. Here is one of the most interesting things. He pulled the CT scan pictures up on the computer screen and scrolled with the mouse from the bottom of my lungs all the way down through my abdomen, showing all cross sections of the the liver and other organs. That was very amazing to see, The carcinomous spots and large tumors are throughout the liver. He just scrolled down through all my organs and we could see them very clearly.
Because I'm still strong and feeling pretty well, Dr. Ward said they need to change the treatment and recommends his Plan B - to do a stronger chemo now, 4 weeks on and 2 off. He even has a Plan C. There is a one in three chance to shrink the cancer. It may give me more time, but at this time he said I have "some months" left. The average would be 6 months, but that means some people go longer, some less. He also said "months turn into years".
Joan had asked me to check about radio ablation they are doing at UCLA. Dr. Ward said they are doing the same thing at University of Utah Huntsman Clinic, and I'm not a candidate for any of it. The tumors I have are far too advanced. You can not use those procedures when tumors are inside the liver. I appreciated all he told me, and the time spent with me - an hour. I know a lot more now than I did.
Although it is sooner or later "always" terminal it sounded like it is quite a gentle death. When you become jaundiced, then it is a matter of weeks. You just become weaker, become sleepy and eventually just don't wake up.
I said again that I'd like to stay at home, and have the Community Home Care come when it would be necessary, or even go to the nursing wing of the Senior Center if necessary because of our remoteness. Dr. Ward and Judy thought that was fine.
Dr. Ward will speak again with Dr. Kim Jones, the oncologist I saw in Utah who was so forthright and involved with all of the family, and they will call Monday with an appointment for me to begin the next stage of chemo in Jackson. He said Dr. Jones had still been working on my case all these months and had spent a lot of time trying to figure out the reason there are some many unknowns. I told him to thank her very much. How special to know someone is doing that.
When we came out of the appointment Roberta and Barbara, Pinedale friends, were there. Roberta was also to see Dr. Ward for her breast cancer checkup. Thankfully she is doing well. Judy served us all some of her birthday cake. The four of us went to lunch together at The Bunnery and had the nicest visit. Gina and I peeked in at the new Trailside Gallery location, went to Staples where I had copies made and she shopped. We went to Corral West, a western clothes store. I got two cute tops, Gina got new Wranglers. Then we stopped by that saddle shop where I bought the saddle stand and I was interested to look at the over 200 saddles they have there - many old with lots of history along with their new stock. We took Kay's paintings out to the Gallery at Wilson and then came on home. It had been snowing all the time were in Jackson and after we got out of town a ways, it quit and we had a good drive back.
Let Gina off at her house and went to get gas and groceries. Again it was blizzarding when I got out of the store and it quit soon down the road, but started up again just after I got home. Nasty tiresome stuff. I stopped for a few pictures of the new calves near the creek. The dogs ran out to meet me, and wanted to run back through the field instead of ride. I think they've been pretty bored lately laying around the house. The Cabelas order of new clothes came yesterday, the UPS truck pulled up behind me at the gate. The two blouses I bought at Corral West just match a couple of the bottoms. Will probably try everything on later to see what fits or not.
I made some shrimp with snow peas stir fry and rice last night so it only took about 10 minutes after getting the groceries put away. Actually I thought it was good that I felt like cooking something after the long day - so that is the difference of not having chemo for the last 10 days, After chemo I wouldn't have really not felt like it at all.
Joe and I talked about all the details last night. He still was concerned about how sick I would be, and I told him it just sounded mostly like it would cause diarrhea. It probably won't be much worse than what I've been through already. And that both Judy and Dr. Ward reminded me I could quit any time I wanted to. Interestingly Joe remembered that he had seen Dr. Ward as a cancer specialist in Jackson sometime after his stroke and/or prostate cancer, when they were looking for some serious problems, and then I remembered that too, having taken copious notes for him that day. And (just a note) Dr. Ward has been very ill with a serious staph infection in his leg after surgery I believe (?) and was in the hospital for six months! So we didn't see him in Utah.
Beverly called today and we had a talk about all the new information as well as what they are up to. Helena sent a draft of her interview of me and I found some corrections and sent it back to her this morning. Worked on the emails that have come in. Got a set of the copies into envelopes and addressed to go to Deb and Bev. Each thing I get done makes "having the affairs in order" closer to being done. I finished up the small pastel painting of the old store at Boulder. Believe me its nothing special, but that's as good as this one is going to get.















